中国康复理论与实践2017，Vol.23Issue(2)：139-145,7.DOI:10.3969/j.issn.1006-9771.2017.02.005
ICF-CY在Duchenne型肌营养不良患儿家庭康复中的应用
Application of ICF-CY in Family Rehabilitation of Children with Duchenne Muscular Dystrophy
李惠 1史惟 1苏怡 1李西华 2陆恺 1周水珍 2王艺2
作者信息
- 1. 复旦大学附属儿科医院,康复中心 上海市201102
- 2. b.复旦大学附属儿科医院 神经科,上海市201102.
- 折叠
摘要
Abstract
Objective To explore the feasibility of assessments of functional and environmental factors in children with Duchenne mus-cular dystrophy (DMD) under the frame of International Classification of Functioning, Disability and Health-Children and Youth Version (ICF-CY). To execute family intervention and to evaluate its effects. Methods A 6-year-and-5-month-old boy with DMD was enrolled to the study. Functional and environmental factors were assessed with the North Star Ambulatory Assessment (NSAA), time tests, hand-held dyna-mometry assessment, body mass index and family interview. Plans of family intervention were settled and executed for one year and at the end of intervention, the boy received all the above assessments to compare the effects of intervention. Results After one-year family inter-vention, the muscle strength was improved or maintained in most muscles except abductors of hip and the body mass index did not change. For the activities, the scores of NSAA increased and maintained, and the result of time tests improved. Otherwise, attitude and execution of parents were improved. Conclusion It is feasible to execute family intervention under the frame of ICF-CY in children with DMD. Both children and their family may benefit from the intervention.关键词
Duchenne型肌营养不良/国际功能、残疾和健康分类(儿童和青少年版)/家庭干预Key words
Duchenne muscular dystrophy/International Classification of Functioning/Disability and Health-Child and Youth Version/family intervention分类
医药卫生引用本文复制引用
李惠,史惟,苏怡,李西华,陆恺,周水珍,王艺..ICF-CY在Duchenne型肌营养不良患儿家庭康复中的应用[J].中国康复理论与实践,2017,23(2):139-145,7.
