全科护理2017，Vol.15Issue(15)：1793-1796,4.DOI:10.3969/j.issn.1674-4748.2017.15.001
新疆维吾尔自治区48例血友病患儿家庭治疗护理现状调查
Survey and analysis of family treatment and nursing status of 48 children with hemophilia in Xinjiang
摘要
Abstract
Objective: To know about the status quo of family treatment and nursing of children with hemophilia in Xinjiang area,and to probe into a new nursing model for family therapy.Methods: By retrospective investigation and with the help of expert consultation to building questionnaire,48 hemophilia patients registered in Xinjiang hemophilia treatment center and their parents issued the questionnaire.The questionnaire was divided into 3 parts,and the patients general information,family therapy,self-care ability score scale (Functional Independence Score in Hemophilia,FISH) scored.Results: Only 18.75% of children with hemophilia factor family carried out injection,and the dosage of coagulation factors was obvious insufficiency;due to economic reasons and cognitive level,family therapy and family nursing situation were not ideal.Conclusions:Compared with other hemophilia clinics in China,there was still a certain gap between the hemophilia patients in Xinjiang and lack of effective social support.The reasons mainly included ethnic minorities in Xinjiang,the low level of education,communication difficulties and nursing staff lack of experience.Further strengthening the training of full-time nurses and carrying out individualized comprehensive care model according to individual conditions could effectively improve the level of family care and improve the quality of life of children.关键词
血友病/居家护理/新疆/家庭治疗Key words
home hemophilia/nursing/Xinjiang/family treatment分类
医药卫生引用本文复制引用
郭婧,王笑笑,芮海鹰..新疆维吾尔自治区48例血友病患儿家庭治疗护理现状调查[J].全科护理,2017,15(15):1793-1796,4.基金项目
新疆维吾尔自治区人民医院院内项目,编号:20130120. （）
