中国循证儿科杂志2017，Vol.12Issue(4)：246-250,5.DOI:10.3969/j.issn.1673-5501.2017.04.002
中文版北极星移动评价量表在Duchenne型肌营养不良症患儿的信度和效度研究
Reliability and validity of the Chinese version of North Star Ambulatory Assessment for children with Duchenne muscular dystrophy
史惟 1李惠 1李西华 2苏怡 1赵蕾 2陆恺 1胡晓平 2翟淳 1周水珍2
作者信息
- 1. 复旦大学附属儿科医院康复中心 上海,201102
- 2. 复旦大学附属儿科医院神经科 上海,201102
- 折叠
摘要
Abstract
ObjectiveTo determine the reliability and validity of North Star Ambulatory Assessment (NSAA).MethodsInclusion criteria: Children diagnosed by gene detection or muscle biopsy as DMD and accepted functional assessment in Childeren''s Hospital of Fudan University from January 2014 to January 2016,being able to walk more than ten meters independently,and in addition ,without severe cognitive retardation were recruited.Twenty patients were scored by two different physical therapeutists at the same time to detect inter-rater reliability.Sixteen patients were scored the second time 3-7 days after the first assessment by the same physical therapeutist to detect test-retest reliability.Relate ageneral category encording way of International Classification of Functioning,Disability and Health-Child and Youth version(ICF-CY) and project concept of NSAA were used to determine content validity of NSAA.Criterion related validity analysis was performed by analyzing the correlation between NSAA scores of 143 children and 6 minutes walking distance(6MWT).ResultsThe reliability analysis of the different test results of two therapists on twenty children showed that the NSAA raw scores and linear scores had excellent inter-rater reliability(ICC=0.96,0.97);16 boys were assessed by the same therapeutist twice with an interval of 3~7 days and the results showed that raw and linear scores of NSAA had great test-retest reliability(ICC=0.96);Twenty linkages were made between seventeen items of NSAA and eight codes of ICY-CY,all of the eight codes belonged to d4(mobility), which meant that contents of NSAA evaluation mainly focused on mobility of DMD patients.The NSAA raw scores and linear scores of all 143 boys and 6MWT, had a fair degree of relationship between the two measures(r=0.40 and r=0.38).ConclusionChinese version of NSAA has good psychometric properties in test-retest reliability and inter-rater reliability in both raw and linear scores.Combined with other measurements, NSAA may effectively evaluate the activity of the patients with DMD in China.关键词
Duchenne型肌营养不良症/活动/评估/信度/效度Key words
Duchenne muscular dystrophy(DMD)/Activity/Evaluate/Reliability/Validity引用本文复制引用
史惟,李惠,李西华,苏怡,赵蕾,陆恺,胡晓平,翟淳,周水珍..中文版北极星移动评价量表在Duchenne型肌营养不良症患儿的信度和效度研究[J].中国循证儿科杂志,2017,12(4):246-250,5.
