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86例恶性肿瘤患儿临终关怀的远程支持实践

王春立 周翾 王旭梅 吴心怡 张颖 朱光华 骆燕辉 周宇晨

护理学报2017,Vol.24Issue(20):58-63,6.
护理学报2017,Vol.24Issue(20):58-63,6.DOI:10.16460/j.issn1008-9969.2017.20.058

86例恶性肿瘤患儿临终关怀的远程支持实践

Hospice Care for Children with Malignant Tumor through Remote Support by Health Professionals:A 86-case Study

王春立 1周翾 1王旭梅 1吴心怡 1张颖 1朱光华 1骆燕辉 1周宇晨1

作者信息

  • 1. 首都医科大学附属北京儿童医院 血液肿瘤中心,北京 100045
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摘要

Abstract

Objective To explore the effect of hospice care on children with malignant tumor through remote support by health professionals. Methods We established a hospice care follow-up team and unified the mode of follow-up. Treatment and nursing guidance and psychological support were provided for 86 parents regularly and children's quality of life and parents' satisfaction with the follow-up were investigated. Results The quality of life of children was fluctuating. The quality of life was lower before receiving hospice care and at the last stage of hospice care, but it was higher during the process of hospice care. The support from medical professionals could alleviate the pain experience and manage the symptoms for children. Conclusion Hospice care though the remote support by health professionals could be an effective way to provide professional guidance for children with malignant tumor and their parents.

关键词

远程/支持/儿童/肿瘤/临终关怀

Key words

remote/support/children/malignant/hospice care

分类

医药卫生

引用本文复制引用

王春立,周翾,王旭梅,吴心怡,张颖,朱光华,骆燕辉,周宇晨..86例恶性肿瘤患儿临终关怀的远程支持实践[J].护理学报,2017,24(20):58-63,6.

基金项目

首都护理学研究专项基金(17HL10) (17HL10)

护理学报

OACSTPCD

1008-9969

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