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德国国家队列组织模式及其启示

修晓蕾 吴思竹 孙小康 钱庆

中华医学图书情报杂志2018,Vol.27Issue(2):50-55,62,7.
中华医学图书情报杂志2018,Vol.27Issue(2):50-55,62,7.DOI:10.3969/j.issn.1671-3982.2018.02.008

德国国家队列组织模式及其启示

Organization moclel of the German national cohort and its enlightenments

修晓蕾 1吴思竹 1孙小康 1钱庆1

作者信息

  • 1. 中国医学科学院医学信息研究所,北京 100020
  • 折叠

摘要

Abstract

Objective To promote the effective management of population cohort data and to provide the beneficial reference for the cohort data management model in our country. Methods After a description of the German national cohort program with an international impact, its organizational model, data types and data management were sum-marized and analyzed, its research target and plan were outlined, its data collection and processing, integration and storage, quality protection and control were studied. Results Multisource data classification management prohibited the application for data and sharing of data use in tested subjects when they were using the data. Conclusion Data standards should be unified, multisource data classification storage should be implemented, the data analysis should be widened and deepened, the right of tested subjects should be made clear, and the data sharing procedure should be standardized in our country according to the inadequate domestic cohort research and the enlightenments of the German national cohort.

关键词

德国国家队列/组织模式/数据类型/数据管理

Key words

German national cohort/Organizational model/Data types/Data management

分类

信息技术与安全科学

引用本文复制引用

修晓蕾,吴思竹,孙小康,钱庆..德国国家队列组织模式及其启示[J].中华医学图书情报杂志,2018,27(2):50-55,62,7.

基金项目

国家重点研发计划精准医学研究重点专项课题"重大疾病精准医学数据库群"(2016YFC0901602) 研究成果之一 (2016YFC0901602)

中华医学图书情报杂志

OACSTPCD

1671-3982

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