上海护理2023，Vol.23Issue(12)：1-5,5.DOI:10.3969/j.issn.1009-8399.2023.12.001
成人初显期强直性脊柱炎患者自我管理障碍因素的质性研究
Qualitative Study on Self-management Obstacles in Patients with Ankylosing Spondylitis in Emerging Adulthood
摘要
Abstract
Objective To deeply understand the self-management obstacles in patients with ankylosing spondylitis(AS)in emerging adulthood,so as to provide a reference for the development of future self-management intervention protocols for these patients.Methods From February to October 2021,a total of 14 patients were selected by convenience sampling who visited or were hospitalized in the Rheumatology and Immunology Department of a Grade III-A hospital in Nanjing for AS in emerging adulthood.They underwent face-to-face semi-structured in-depth interviews based on the interview outline designed from the Integrated Model of Change and the descriptive phenomenological approach.Then,the interview data were analyzed by Colaizzi's 7-step analysis method.Results A total of 3 themes and 7 sub-themes were extracted address the self-management obstacles in patients with AS in emerging adulthood as follows.Lack of self-management willingness in the awareness stage:weak self-management willingness,lack of self-management knowledge and skills,and insufficient perception of the benefits and consequences of self-management behaviors;lack of health management beliefs in the motivation stage:lack of health management beliefs,and insufficient information support for effective self-management;lack of social support and supervision in the action stage:poor compliance with self-management behaviors,low level of self-efficacy,and weak support and supervision of family members and healthcare providers.Conclusion Healthcare providers should strengthen the self-management awareness of patients with AS in emerging adulthood and improve their perception of disease risk.They should also expand access to professional information so as to help patients establish correct health management beliefs.Furthermore,they should fully mobilize the social support system and actively explore a disease management model for patients with AS in emerging adulthood that aligns with China's realities.关键词
脊柱炎,强直性/成人初显期/自我管理/质性研究/护理Key words
Spondylitis,ankylosing/Emerging adulthood/Self-management/Qualitative study/Nursing分类
医药卫生引用本文复制引用
朱迪,陈雁,赵志玲,陈秋菊,徐任菊,聂晓寒..成人初显期强直性脊柱炎患者自我管理障碍因素的质性研究[J].上海护理,2023,23(12):1-5,5.基金项目
江苏省卫生健康委医学科研项目(CZHB216-2020) （CZHB216-2020）
南京鼓楼医院护理科研重点项目(ZSB720-3). （ZSB720-3）
