上海护理2024，Vol.24Issue(1)：11-15,5.DOI:10.3969/j.issn.1009-8399.2024.01.003
青少年神经性厌食患者父母照护体验的质性研究
Qualitative Study on the Care Experience of Parents of Adolescents Diagnosed with Anorexia Nervosa
摘要
Abstract
Objective To understand the care experience of parents of adolescents diagnosed with anorexia nervosa,aiming to provide a reference for developing targeted interventions.Methods From September to November 2022,the parents of 14 adolescents diagnosed with anorexia nervosa were selected by purposive sampling to receive semi-structured interviews.Relevant themes were refined from their interview data using Colaizzi's 7-step analysis method.Results The main experiences of parents when caring for adolescents diagnosed with anorexia nervosa were refined into the following four themes:negative experience(lack of awareness of the disease;emotional impact and guilt associated with patients'low weight;distorted parent-child relationship behind anorexia;stigma encountered;concern for disease prognosis),care burden(changes in eating habits and customs;increased economic burden),positive experience(mutual support;reinforcement of care beliefs;personal growth and transformation),and desire for all-round support(ongoing professional care assistance;greater societal attention).Conclusion Healthcare providers should offer guidance and support to parents,encompassing knowledge of care,skills of care and parent-child interaction strategies,and supplement with positive psychological interventions.In this way,healthcare providers can alleviate the negative experiences of parents of adolescents diagnosed with anorexia nervosa and facilitate faster and more favorable prognosis in patients.关键词
神经性厌食/青少年/照护体验/质性研究Key words
Anorexia nervosa/Adolescent/Care experience/Qualitative study分类
医药卫生引用本文复制引用
黄楚贤,施忠英,刘玥..青少年神经性厌食患者父母照护体验的质性研究[J].上海护理,2024,24(1):11-15,5.基金项目
上海交通大学医学院护理科研重中之重项目(Jyhz2307) （Jyhz2307）
上海现代护理职业教育集团特聘兼职教师资助计划(hlzjt-pgr202316). （hlzjt-pgr202316）
