儿童青少年慢性疾病用药自我管理评估工具的循证评价OACSTPCD
Evidence-Based Evaluation of Self-Management Evaluation Tools for Medication in Children and Adolescents with Chronic Diseases
目的:系统评价儿童青少年慢性疾病(慢病)用药自我管理评价工具的现状,为保障儿童青少年慢病患者的治疗效果提供循证医学证据.方法:系统检索PubMed、EMBase、the Cochrane Library、CBM、CNKI、维普和万方等国内外数据库,检索时限为建库至2023年3月,纳入儿童慢性疾病用药自我管理评价工具的文献.采用描述性方法对结果进行分析.结果:针对疾病类型共纳入16篇文献,43.75％(7/16)为糖尿病自我管理量表、18.75％(3/16)为儿童哮喘自我管理量表、12.50％(2/16)为青少年通用自我管理量表、6.25％(1/16)为儿童胰岛素治疗自我管理量表、6.25％(1/16)为儿童癫痫用药自我管理量表.25.00％(4/16)量表设计有理论依据和中文版.纳入的量表领域为1～8(3.69±1.74)个,量表条目为14～52(27.81±10.24)个.纳入量表中,用药管理条目缺乏,主要包括遵医嘱用药、调整药物剂量、药物不良反应、服药的方便性和服药责任感等内容.结论:目前我国缺乏自主开发的儿童青少年慢性疾病用药管理评价工具,评价工具角度单一,缺乏个人、家庭、医疗系统和社会不同层面的整合,建议开发与验证适用于我国儿童青少年慢性疾病患者的自我管理评价工具,为临床实施自我管理计划提供参考.
Objective:To systematically evaluate the current status of self-management evaluation tools for medication in children and adolescents with chronic diseases,so as to provide evidence-based medical evidence to ensure effective treatment outcomes for children and adolescents with chronic diseases.Methods:PubMed,EMBase,the Cochrane Library,CBM,CNKI,VIP,Wanfang and other domestic and foreign databases were systematically retrieved,and the retrieval time was from the establishment of the database to Mar.2023.Literature pertaining to self-management evaluation tools for medication in children with chronic diseases was enrolled and the results were analyzed by descriptive methods.Results:A total of sixteen articles were enrolled according to disease types.The distribution of articles included 43.75％(7/16)on diabetes self-management scales,18.75％(3/16)on children's asthma self-management scales,12.50％(2/16)on adolescents'general self-management scales,6.25％(1/16)on children's insulin treatment self-management scales,and 6.25％(1/16)on children's epilepsy medication self-management scales.Of the included scales,25.00％(4/16)had a theoretical basis and were available in Chinese.The included scales spanned from 1 to 8(3.69±1.74)domains and included from 14 to 52(27.81±10.24)items.However,medication management items were found to be lacking,primarily concerning medication compliance,adjustment of medication dosage,adverse drug reactions,convenience of medication,and sense of medication responsibility.Conclusion:Currently,there is a lack of independently developed self-management evaluation tools for medication in children and adolescents with chronic diseases in China.The current evaluation tools have a single perspective and lack the integration of individual,family,healthcare system and society at different levels.It is recommended to develop and validate self-management evaluation tools tailored to children and adolescents with chronic diseases in China,so as to provide valuable insights for the clinical implementation of self-management regimen.
李丹;杨亚亚;俞丹;杨春松
四川大学华西第二医院药学部/循证药学中心,四川大学出生缺陷与相关妇儿疾病教育部重点实验室,成都 610041
药学
癫痫儿童青少年自我管理评价工具循证评价
epilepsychildren and adolescentsself-managementevaluation toolsevidence-based evaluation
《儿科药学杂志》 2024 (001)
10-14 / 5
四川省科技计划项目(重点研发项目),编号2020YFSO035;四川省干部保健科研项目(普及应用项目),编号川干研2022-1702.
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