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头颈肿瘤免疫治疗病人居家自我管理体验的质性研究OA

Home self-management experience of patients undergoing immunotherapy for head and neck tumors:a qualitative study

中文摘要英文摘要

目的:探讨头颈肿瘤免疫治疗病人居家期间自我管理的体验,为护理干预及管理提供参考.方法:采用目的抽样法,选取2023 年 2 月—6 月在长沙市某三级甲等医院肿瘤内科接受免疫治疗的 18 例头颈肿瘤病人,进行面对面半结构式访谈,采用 Colaizzi 7 步分析法进行资料分析.结果:头颈肿瘤免疫治疗病人的居家自我管理体验归纳为 4 个主题 11 个亚主题,居家自我管理能力缺陷(认知受限、技能不足、行为依从性弱)、居家自我管理支持资源匮乏(家庭支持不足、专业指导缺乏)、居家自我管理心理负担重(对副反应预后的不确定感、自我形象紊乱、病耻感增强)、居家自我管理的行为动力(同伴支持和医务人员支持、对个人健康及家庭的责任感、树立战胜疾病的信念).结论:头颈肿瘤免疫治疗病人居家期间,护理人员需关注病人心理感受、生理体验及支持需求,提供更多针对性的指导和干预,提高其自我管理能力,以提升其生活质量.

Objective:To explore the self-management experience of patients with head and neck tumor immunotherapy at home,and to provide reference for nursing intervention and management.Methods:Objective sampling method was used and a total of 18 patients with head and neck tumor who received immunotherapy in the oncology department were selected in a Grade-A hospital in Changsha city from February to June 2023.Face-to-face semi-structured interviews were conducted,and data were analyzed by Colaizzi 7-step analysis method.Results:The home self-management experience of head and neck tumor immunotherapy patients was summarized into 4 themes and 11 subthemes:Deficiency of home self-management ability(limited cognition,insufficient skills,weak behavioral compliance),lack of home self-management support resources(insufficient family support,lack of professional guidance),heavy psychological burden of home self-management(uncertain prognosis of side effects,disorganized self-image,increased stigma),behavioral motivation of home self-management(peer support and medical treatment)Staff support,a sense of responsibility for personal health and family,a sense of faith in active treatment to overcome illness).Conclusions:During the period of head and neck tumor immunotherapy patients at home,nursing staff should pay attention to patients'psychological feelings,physiological experience and support needs,provide more targeted guidance and intervention,improve their self-management ability,and improve their quality of life.

张整洁;刘阳;潘利洪;贺晓华;黎静;谌永毅

421001,南华大学护理学院410031,湖南省肿瘤医院410011,中南大学湘雅二医院:

头颈肿瘤免疫治疗居家自我管理体验质性研究

head and neck tumorsimmunotherapyhome self-managementexperiencequalitative research

《全科护理》 2024 (007)

1212-1217 / 6

湖南省肿瘤医院"科研攀登计划"重大专项和重点研发基金项目,编号:YF2020010;湖南省自然科学基金项目,编号:2020JJ4417.

10.12104/j.issn.1674-4748.2024.07.006

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