视神经脊髓炎谱系疾病患者疾病感知与自我管理的相关性研究OACSTPCD

Objective To explore the current status of disease perception and self-management in patients with neuromyelitis optica spectrum disorders(NMOSD),and to analyze the correlation between them.Meth-ods From July 2022 to March 2023,98 patients with NMOSD admitted in the Department of Neurology of the First Affiliated Hospital of Chongqing Medical University were selected by convenience sampling method for the study.The Brief Illness Perception Questionnaire(BIPQ)and the Chronic Disease Self-Management Study Measures(CDSMS)were used to investigate the statuses of illness perception and chronic disease self-management of the patients,respectively.The correlation between the illness perception and self-management of NMOSD patients was analyzed by Pearson correlation analysis,and the multiple linear stepwise regression was used to analyze the factors affecting patients'illness perception.Results The total score of NMOSD pa-tients'illness perception was 44.52±8.12,and the total score of self-management was 52.15±15.29.Com-parison of the illness perception scores of patients with different literacy levels,occupation types,health insur-ance fee payment methods,per capita monthly household income,period of illness,and Extended Disability Status Scale(EDSS)scores showed statistically significant differences(P<0.05).Multiple linear stepwise re-gression analysis showed that patients'literacy,monthly family income,period of illness and health insurance payment method were influential factors of illness perception(P<0.05).Pearson correlation analysis showed that the total scores and dimensions scores of the NMOSD patients'illness perception scale were negatively correlated with those of the total scores and dimensions scores of the CDSMS(P<0.05).Conclusion Medi-cal personnel should pay attention to the psychological factors of NMOSD patients,help patients to improve their negative feelings,correctly recognize and understand the knowledge of the disease,set up positive health beliefs,and improve the patients'ability of disease self-management,so as to better improve the quality of life of patients.