检验医学与临床2024，Vol.21Issue(9)：1218-1223,6.DOI:10.3969/j.issn.1672-9455.2024.09.007
视神经脊髓炎谱系疾病患者疾病感知与自我管理的相关性研究
Correlation between illness perception and self-management in patients with neuromyelitis optica spectrum disorders
摘要
Abstract
Objective To explore the current status of disease perception and self-management in patients with neuromyelitis optica spectrum disorders(NMOSD),and to analyze the correlation between them.Meth-ods From July 2022 to March 2023,98 patients with NMOSD admitted in the Department of Neurology of the First Affiliated Hospital of Chongqing Medical University were selected by convenience sampling method for the study.The Brief Illness Perception Questionnaire(BIPQ)and the Chronic Disease Self-Management Study Measures(CDSMS)were used to investigate the statuses of illness perception and chronic disease self-management of the patients,respectively.The correlation between the illness perception and self-management of NMOSD patients was analyzed by Pearson correlation analysis,and the multiple linear stepwise regression was used to analyze the factors affecting patients'illness perception.Results The total score of NMOSD pa-tients'illness perception was 44.52±8.12,and the total score of self-management was 52.15±15.29.Com-parison of the illness perception scores of patients with different literacy levels,occupation types,health insur-ance fee payment methods,per capita monthly household income,period of illness,and Extended Disability Status Scale(EDSS)scores showed statistically significant differences(P<0.05).Multiple linear stepwise re-gression analysis showed that patients'literacy,monthly family income,period of illness and health insurance payment method were influential factors of illness perception(P<0.05).Pearson correlation analysis showed that the total scores and dimensions scores of the NMOSD patients'illness perception scale were negatively correlated with those of the total scores and dimensions scores of the CDSMS(P<0.05).Conclusion Medi-cal personnel should pay attention to the psychological factors of NMOSD patients,help patients to improve their negative feelings,correctly recognize and understand the knowledge of the disease,set up positive health beliefs,and improve the patients'ability of disease self-management,so as to better improve the quality of life of patients.关键词
视神经脊髓炎谱系疾病/疾病感知/自我管理/简易疾病感知问卷/慢性病自我管理研究测量表Key words
neuromyelitis optica spectrum disorders/illness perception/self-management/brief ill-ness perception questionnaire/chronic disease self-management study measure分类
医药卫生引用本文复制引用
刘艳萍,张学兵,杨陈,冯金洲..视神经脊髓炎谱系疾病患者疾病感知与自我管理的相关性研究[J].检验医学与临床,2024,21(9):1218-1223,6.基金项目
国家自然科学基金青年项目(81701191) （81701191）
重庆市重点专科建设《临床护理》精品建设项目(0203[2023]47号202336). （0203[2023]47号202336）
