中国当代儿科杂志2024，Vol.26Issue(4)：420-424,5.DOI:10.7499/j.issn.1008-8830.2310037
脊髓性肌萎缩症家庭康复与护理的研究进展
Recent research on home rehabilitation and nursing for spinal muscular atrophy
摘要
Abstract
Spinal muscular atrophy(SMA)is an autosomal recessive neuromuscular disorder.With the emergence of disease-modifying therapies,the prognosis of SMA has significantly improved,drawing increased attention to the importance of home rehabilitation and nursing management.Long-term,standardized home rehabilitation and nursing can delay the progression of SMA,enhance the psychological well-being,and improve the quality of life of both patients and caregivers.This article provides an overview of the goals of home rehabilitation,basic functional training methods,respiratory management,and nutritional management for SMA patients,as well as psychological health issues,emphasizing the significance of obtaining appropriate home rehabilitation and support during the care process.[Chinese Journal of Contemporary Pediatrics,2024,26(4):420-424]关键词
脊髓性肌萎缩症/家庭康复/生活质量评价Key words
Spinal muscular atrophy/Home rehabilitation/Quality of life assessment引用本文复制引用
冷明月,彭宏浩,吴至凤..脊髓性肌萎缩症家庭康复与护理的研究进展[J].中国当代儿科杂志,2024,26(4):420-424,5.基金项目
重庆市科卫联合医学科研项目(2021MSXM091). （2021MSXM091）
