中国医学伦理学2024，Vol.37Issue(6)：745-752,8.DOI:10.12026/j.issn.1001-8565.2024.06.19
叙事医学语境下癌末患者家庭照护者预期性悲伤影响因素的质性研究
A qualitative study on the influencing factors of anticipatory grief among family caregivers of terminal-stage cancer patients in the context of narrative medicine
摘要
Abstract
Objective:To explore the influencing factors of anticipatory grief among family caregivers of terminal-stage cancer patients,and provide a reference for formulating intervention programs for anticipatory grief.Methods:An interview outline was designed,and the descriptive qualitative research method was used.The aim was to select 11 family narrative caregivers of patients in the Department of Medical Oncology,Nanfang Hospital,Southern Medical University for semi-structured in-depth interviews.Based on the social ecology model,using the narrative theory of life and health as the framework,the content analysis method was adopted to analyze the data.Results:A total of 3 themes and 12 sub-themes were extracted,including the influencing factors at the individual level(narrative literacy,cognitive level towards death,and sense of self-worth),the influencing factors at the interpersonal level(patient's disease situation,education level,economic status,family narrative connection,peer narrative connection,and narrative connection between doctors and family members),and the influencing factors at the cultural policy level(social culture,physical environment of the ward,and policy level).Conclusion:Anticipatory grief was affected by multiple factors,and multi-dimensional narrative connection should be constructed from individual,interpersonal,family,social,and other levels to prevent caregivers from falling into a narrative lock of single caregiver identity,alleviate the impact of anticipatory grief on caregivers,and improve their quality of life.关键词
癌未患者/家庭照护者/叙事闭锁/叙事素养/预期性悲伤Key words
terminalstage cancer patients/family caregiver/narrative lock/narrative literacy/anticipatory grief分类
医药卫生引用本文复制引用
贾宇哲,张广清,杨晓霖..叙事医学语境下癌末患者家庭照护者预期性悲伤影响因素的质性研究[J].中国医学伦理学,2024,37(6):745-752,8.基金项目
南方医科大学顺德医院科研启动计划项目"叙事医学与临床学科综合实力提升"(SRSP2021024) （SRSP2021024）
