组织工程与重建外科杂志2024，Vol.20Issue(3)：335-343,350,10.DOI:10.3969/j.issn.1673-0364.2024.03.011
头颈部葡萄酒色斑患者的病耻感现状及其影响因素
Status and influencing factors of stigma in patients with port wine stains in the head and neck
摘要
Abstract
Objective To explore the current status and influencing factors of stigma in patients with port wine stains(PWS)in the head and neck.Methods Using the convenient sampling method,113 patients with PWS in the head and neck from August 2022 to December 2022 were recruited.The general demographic data questionnaire,stigma scale for chronic illness(SSCI),social impact scale(SIS)and self-esteem scale(SES)were used to conduct a questionnaire survey.Results The SSCI score of patients with PWS was 50.61±22.2,and the SIS score was 48.71±15.17.Single-factor analysis of variance showed that the influencing factors of stigma were education level,monthly income,treatment times,lesion location,and lesion size(P<0.05);The SES score of patients with PWS was 24.75±4.92,and single-factor analysis of variance showed that the influencing factors of self-esteem were monthly income and job absence(P<0.05).SSCI scores and SIS scores were negatively correlated with SES scores(P<0.01).Conclusion Patients with PWS had a moderate level of stigma and a low level of self-esteem.Both chronic illness stigma and social impact stigma are significantly negatively correlated with the level of self-esteem.Medical staff should provide appropriate guidance to patients during treatment,enhancing patients'confidence and guiding patients to face the disease positively,and meanwhile,call on the public to give more concern to patients with chronic skin diseases.关键词
葡萄酒色斑/病耻感/影响因素Key words
Port-wine stains/Stigma/Influencing factors分类
医药卫生引用本文复制引用
江燕,马刚,冉雪会,林晓曦,商颖,于文心,徐青,彭昊,韩玥,沈玲悦..头颈部葡萄酒色斑患者的病耻感现状及其影响因素[J].组织工程与重建外科杂志,2024,20(3):335-343,350,10.基金项目
上海市卫生健康委员会卫生行业临床研究专项(202240150) （202240150）
上海市科学技术委员会临床医学研究中心项目(22MC1940300). （22MC1940300）
