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首页|期刊导航|新医学|基于神经多样性范式的孤独症谱系障碍领域研究者与孤独症社群合作框架探讨

基于神经多样性范式的孤独症谱系障碍领域研究者与孤独症社群合作框架探讨

披垒 青衫

新医学2024,Vol.55Issue(12):971-978,8.
新医学2024,Vol.55Issue(12):971-978,8.DOI:10.3969/j.issn.0253-9802.2024.12.003

基于神经多样性范式的孤独症谱系障碍领域研究者与孤独症社群合作框架探讨

Establishing a co-production framework between researchers and the autistic community:embracing the neurodiversity paradigm

披垒 1青衫1

作者信息

  • 1. 青衫Aspie,广东 广州 510000||中国孤独症谱系人士身份认同研究(iCAP)咨询协作组,广东 广州 510000
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摘要

Abstract

Autism research is evolving from a medical paradigm,which emphasizes deficits and interventions,to a neurodiversity paradigm that values autism as an integral part of human diversity.Historically,the medical paradigm's focus on"rescue"efforts has distanced researchers from the autistic community,often failing to address the community's real needs.In contrast,the neurodiversity paradigm advocates a comprehensive understanding of autism and the adoption of participatory research practices.This shift encourages active collaboration between researchers and autistic individuals,fostering inclusive knowledge production that is both meaningful and impactful for the autistic community.However,achieving this collaborative approach requires dismantling social barriers,such as power imbalances,that hinders effective partnership.This article explores the principles and practice of a neurodiversity-aligned participatory research approach and proposes a co-production framework designed to support researchers and the autistic community in advancing autism research that is relevant,respectful,and responsive.

关键词

孤独症/孤独症谱系障碍/神经多样性/参与式研究/合作生产

Key words

Autism/Autism spectrum disorder(ASD)/Neurodiversity/Participatory research/Co-production

引用本文复制引用

披垒,青衫..基于神经多样性范式的孤独症谱系障碍领域研究者与孤独症社群合作框架探讨[J].新医学,2024,55(12):971-978,8.

新医学

OACSTPCD

0253-9802

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