低龄孤独症谱系障碍儿童家长亲职压力的影响因素OACSTPCD
Influencing factors of parenting stress in parents of children with autism spectrum disorder
目的 研究低龄孤独者谱系障碍(ASD)儿童家长亲职压力的影响因素,为家庭干预的家长关爱提供个性化指导和支持.方法 招募 2022 年 5 月至 2024 年 2 月在中山大学附属第三医院儿童发育行为中心住院干预的 302 个低龄ASD儿童家庭进行问卷调查,调查内容包括自编社会经济地位量表(SES)、父母本人的亲职压力量表(PSI-SF)和儿童的社交反应量表第 2 版(SRS-2)、适应性行为评定量表第 2 版(ABAS-Ⅱ)幼儿版,并对数据进行分析.结果 儿童性别、儿童年龄、养育方式、主干预家长的性别、家庭年收入、父亲学历和母亲职业对家长的亲职压力均无影响(P均>0.05);家庭不同儿童数量、母亲学历和父亲职业的家长亲职压力比较差异均有统计学意义(P均<0.05).家长的PSI-SF得分与低龄ASD儿童的ABAS-Ⅱ综合得分呈负相关(P<0.01),与SRS-2 总分及各个维度得分呈正相关(P<0.01).家庭儿童数量和ABAS-Ⅱ综合得分不能预测家长的亲职压力,母亲学历、父亲职业和SRS总分可预测家长的亲职压力,可解释家长亲职压力 26.8%的变异,其中SRS-2 总分效应量为 0.17,对回归方程的贡献最大;在SRS-2 中主要是刻板维度正向预测家长的亲职压力(B=0.709,β=0.213,P<0.05),可解释家长亲职压力21.8%的变异.结论 低龄ASD儿童的社交障碍程度越严重,主要是狭隘兴趣和重复刻板行为越明显,家长的亲职压力越大,提示在推进以父母介导的家庭干预时,不仅要关注儿童社交沟通核心障碍的改善,也要重视父母对儿童狭隘兴趣和重复刻板行为的理解和干预.
Objective To investigate the factors influencing parenting stress among parents of children with autism spectrum disorder(ASD),aiming to provide personalized guidance and support for parental care in family interventions.Methods A total of 302 families with young children with ASD who received inpatient interventions at the Child Developmental and Behavioral Center of the Third Affiliated Hospital of Sun Yat-sen University from May 2022 to February 2024 and their parents were recruited to complete the questionnaires,which included Socioeconomic Status Scale(SES),Parenting Stress Index-Short Form(PSI-SF),Social Responsiveness Scale-Second Edition(SRS-2)and Adaptive Behavior Assessment System-Second Edition(ABAS-Ⅱ)of the children.Subsequently,relevant data were analyzed.Results There were no statistical differences in parenting stress among parents based on the gender of child,the age of child,parenting style,gender of the primary intervention parent,family annual income,father's education,and mother's occupation(all P>0.05).However,there were statistical differences in parenting stress among parents in terms of the number of children in the family,mother's education,and father's occupation(all P<0.05).The scores of PSI-SF were negatively correlated with the comprehensive scores of ABAS-Ⅱ for young children with ASD(P<0.01),whereas were positively correlated with the total scores and the score of each dimension of SRS-2(P<0.01).The number of children in the family and ABAS-Ⅱ comprehensive score could not predict parenting stress,while mother's education,father's occupation and SRS-2 total score could predict parenting stress,explaining 26.8%of the variance in parenting stress.The effect size of SRS-2 total score was 0.17,contributing the most to regression equation.The main predictor of SRS was the restricted and repetitive behavior dimension(B=0.709,β=0.213,P<0.05),explaining 21.8%of the variance in parenting stress.Conclusions The more severe the social impairment in the young children with ASD,particularly in terms of restricted interests and repetitive behaviors,the greater the parenting stress.This suggests that in promoting family interventions guided by parents,we should not only focus on alleviating core social communication impairments,but also emphasize parents'understanding and intervention in children's restricted interests and repetitive behaviors.
尹培培;邢艺沛;季月;曾舒婷;梁凤晶;岑超群
中山大学附属第三医院儿童发育行为中心,广东 广州 510630中山大学附属第三医院儿童发育行为中心,广东 广州 510630中山大学附属第三医院儿童发育行为中心,广东 广州 510630中山大学附属第三医院儿童发育行为中心,广东 广州 510630中山大学附属第三医院儿童发育行为中心,广东 广州 510630中山大学附属第三医院儿童发育行为中心,广东 广州 510630
孤独症谱系障碍儿童亲职压力严重程度行为
Autism spectrum disorderChildrenParenting stressSeverityBehavior
《新医学》 2024 (12)
999-1008,10
广东省科技计划项目(2023A1111120012)广州市科技计划项目(2024B03J0529)中山大学附属第三医院临床研究专项基金(启航计划)(QHJH202307)
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