孤独症儿童的干预困境与父母养育成长体验的质性研究OACSTPCD
A qualitative study of the intervention dilemmas and parenting growth experiences for parents of children with autism
目的 挖掘孤独症儿童的干预困境与父母的养育成长体验,旨在为制定家庭支持措施提供依据.方法 通过描述性现象学研究,选取 2023 年 1 至 4 月在中山大学附属第三医院儿童发育行为中心就诊的 20 名孤独症儿童父母进行半结构式访谈,采用Colaizzi 7 步法分析资料.结果 孤独症儿童的干预困境共提炼 2 个主题:知识与资源匮乏、家庭内部冲突与分歧.父母养育成长体验共提炼 3 个主题:包容与坚韧的心态、能力的多维提升、家庭成员重构自我与人生价值.结论 孤独症儿童父母经历了干预困境,收获了积极的养育成长体验.支持孤独症儿童,帮助父母积极应对挑战至关重要.
Objective To explore the intervention dilemma of autistic children and their parents'upbringing and growth experience,aiming to provide evidence for family support measures.Methods Through a descriptive phenomenological study,semi-structured interviews were conducted with 20 parents of children with autism from January to April 2023 at Child Development and Behavior Center of the Third Affiliated Hospital of Sun Yat-sen University.And data were analyzed using Colaizzi's 7-step method.Results The intervention dilemmas of children with autism were distilled into two themes:lack of knowledge and resources,and intra-family conflict and disagreement.The parenting and growth experiences of parents were distilled into three themes:inclusive and tenacious mentality,multi-dimensional improvement of ability,and family members'reconstruction of self and life value.Conclusions Parents of children with autism face intervention dilemmas while having positive caring growth experiences.Supporting children with autism and helping parents positively cope with challenges is crucial.
戴雨珅;张利峰;冯永申;刘劭菲;冀彦;陈妙盈
中山大学护理学院,广东 广州,510080中山大学护理学院,广东 广州,510080中山大学护理学院,广东 广州,510080中山大学护理学院,广东 广州,510080中山大学附属第三医院儿童发育行为中心,广东 广州,510630中山大学附属第三医院儿童发育行为中心,广东 广州,510630
孤独症成长困境干预父母质性研究
AutismGrowth dilemmaInterventionParentsQualitative research
《新医学》 2024 (12)
1009-1016,8
广东省哲学社会科学规划项目(GD22CSH02)
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