康复学报2025，Vol.35Issue(1)：30-35,6.DOI:10.3724/SP.J.1329.2025.01004
孤独症谱系障碍儿童家长自我中心社会网络问卷的编制和信效度检验
Development and Validation of an Egocentric Social Network Questionnaire for Parents of Children with Autism Spectrum Disorder
摘要
Abstract
Objective An egocentric social network questionnaire for parents of children with autism spectrum disorder(ASD)in China was preliminarily developed and tested for its reliability and validity,so as to facilitate the evaluation of parents'so-cial networks and follow-up research.Methods A convenience sample of 123 parents of children with ASD who visited the Depart-ment of Child Health at Children's Hospital of Nanjing Medical University,from August 2022 to March 2024 were selected as the study subjects.The general data questionnaire,egocentric social network questionnaire and perceived social support scale were used to conduct the survey.Trained rehabilitation therapists and psychotherapists guided parents filled out the questionnaires.The egocen-tric social network questionnaire was designed using nomination generation and nomination interpretation methods.The question-naire first required parents to nominate people who supported them in raising their children,and then answer other questions related to the nominated persons,such as network size,interaction frequency,geographic distance,satisfaction level,and type of support.The questionnaire assigned weight values based on the social relationship distance between parents and the nominated persons and scored the answers.Cronbach's α coefficient and McDonald's ω coefficient were used to verify the reliability of the egocentric social network questionnaire.With perceived social support scale as the criterion,Pearson correlation analysis was used to evaluate the va-lidity of the egocentric social network questionnaire.Results The egocentric social network questionnaire for parents of children with ASD showed good reliability and validity.The Cronbach's α coefficient was 0.914 for the total score of the questionnaire,0.937 for the network size,0.861 for the interaction frequency,0.886 for the geographic distance,0.874 for the satisfaction level,and 0.895 for the type of support.The McDonald's ω coefficient for the total score of the questionnaire was 0.964.The Pearson correlation co-efficients r values between the network size,interaction frequency,geographic distance,type of support,satisfaction level and total score of the questionnaire and the total score of the perceived social support scale were 0.51,0.52,0.49,0.58,0.49 and 0.56,all with P<0.001,indicating strong correlations.Conclusion The egocentric social network questionnaire for parents of children with ASD has good reliability and validity.The questionnaire evaluation method is simple and time-saving,with good practicality and practical-ity,and can be used as an evaluation tool for the social network of parents of children with ASD in China.However,it is still neces-sary to expand the sample size and further improve the questionnaire for future research and application.关键词
孤独症谱系障碍/儿童家长/社会网络问卷/社会支持/问卷编制/信效度Key words
autism spectrum disorder/parents of children/social network questionnaire/social support/questionnaire develop-ment/reliability and validity引用本文复制引用
潘圆圆,刘倩琦,梁旻璐,吴丹丹,林枫..孤独症谱系障碍儿童家长自我中心社会网络问卷的编制和信效度检验[J].康复学报,2025,35(1):30-35,6.基金项目
江苏省妇幼健康研究会研究课题(JSFY202301) （JSFY202301）
