中国医学伦理学2025，Vol.38Issue(3)：267-274,8.DOI:10.12026/j.issn.1001-8565.2025.03.01
癌症儿童安宁疗护研究进展
Research progress on hospice care for children with cancer
摘要
Abstract
Hospice care for children with cancer is an important issue in the medical field,involving multidisciplinary comprehensive care and concern.Condensing the development of hospice care from the perspective of the needs of children with cancer and their families,as well as identifying the challenges in the supply of hospice care services for children with cancer,are of great significance for promoting the development of pediatric hospice care in China and improving the quality of life of children with cancer and their families.By sorting out the overview and necessity of hospice care and analyzing the hospice care needs of children with cancer and their families,it was concluded that children with cancer have the needs for pain relief,high-quality care,companionship,and security,whereas their families have the needs for emotional support,professional guidance,and timely information.The paper summarized the current problems in hospice care for children with cancer and their families,such as a lack of medical resources,inadequate psychological support,poor doctor-patient communication,and moral and ethical dilemmas.Based on these,this paper proposed some measures,such as adhering to child-centered care and implementing holistic care services;broadening the supply of medical resources and establishing multidisciplinary integration mechanisms;focusing on the needs of children's families and strengthening the professional skills of nursing staff;as well as emphasizing the protection of patients'rights and interests and breaking the moral and ethical dilemmas.关键词
癌症儿童/安宁疗护/医疗护理服务/整体性照护Key words
children with cancer/hospice care/medical care service/holistic care引用本文复制引用
杨美芳,肖美芳,赵健..癌症儿童安宁疗护研究进展[J].中国医学伦理学,2025,38(3):267-274,8.基金项目
2021年西南医科大学校级社科项目"泸州市儿科医生职业精神现状及对策研究"(2021SKQN15) （2021SKQN15）
西南医科大学2023年校级教改课题"泸州市儿科医生职业精神现状及对策研究"(JG2023yb152) （JG2023yb152）
西南医科大学虚拟仿真实验教学一流课程重点培育项目"护理人文关怀—临终情境照护体验虚拟仿真实验"(XNFZ20220001) （XNFZ20220001）
