中国医学伦理学2025，Vol.38Issue(5)：588-595,8.DOI:10.12026/j.issn.1001-8565.2025.05.07
青少年抑郁症照护者就医体验的质性研究
A qualitative study on the medical experience of caregivers of adolescent depression
摘要
Abstract
Objective:To explore the medical experience of caregivers of adolescent depression.Methods:In-depth interviews were conducted with 35 caregivers of hospitalized adolescents with depression undergoing treatment,to explore their experiences and feelings during their children's medical treatment.The Colaizzi phenomenological seven-step analysis method was employed to summarize and extract themes.Results:A total of five themes were extracted,including the transformation of attitude towards the disease from denial to acceptance;the treatment process failing to meet expectations;complex emotional experiences featuring the coexistence of hope and disappointment;negative feedback regarding communication with medical staff;difficulties in accessing medical services,and the expectation for more assistance.Conclusion:Caregivers lack sufficient knowledge about the disease during their children's medical-seeking process,the disease treatment process fails to meet expectations,and there is negative feedback regarding communication with medical staff.Overall,medical experience is complex,and current medical services still have deficiencies.It is urgent to pay attention to the medical experiences of caregivers,enhance their disease cognition,standardize the diagnosis and treatment process,improve the effect of doctor-patient communication,expand multi-channel medical-seeking methods,and further meet the needs of patients and caregivers.关键词
青少年抑郁症/照护者/就医体验/质性研究Key words
adolescent depression/caregiver/medical experience/qualitative study引用本文复制引用
刘净雯,邓蕊..青少年抑郁症照护者就医体验的质性研究[J].中国医学伦理学,2025,38(5):588-595,8.基金项目
2024年山西省哲学社会科学规划课题重大课题"中国临床试验受试者群体伦理问题研究"(2024ZD012) （2024ZD012）
2023年度山西省科技战略研究专项"研究者发起的临床研究伦理问题及伦理治理"(202304031401099) （202304031401099）
