中国医学伦理学2025，Vol.38Issue(6)：687-694,8.DOI:10.12026/j.issn.1001-8565.2025.06.02
疾病叙事中的病友叙事共同体构建与情感支持研究
Research on the construction of a patient narrative community and emotional support in disease narratives
摘要
Abstract
Taking the Z Cancer Patient Organization in Beijing as an example,by analyzing the disease narratives of cancer patients,this paper elucidated the construction of a patient narrative community and the operation mechanism of patient emotional support in the patient organization.This study found that firstly,under the advocacy of the group's anti-cancer philosophy in the patient organization,the shared identity of suffering from cancer and the frequency of participation in organizational activities were the sources of cancer patients becoming cancer friends,establishing narrative connections,and forming emotional relationships.Secondly,the collective narrative activities of"talk therapy"were important mechanisms for constructing a patient narrative community and initiating mutual assistance practices among patients.Thirdly,emotional support was the main practice form of mutual assistance among patients,as well as the alignment of narratives and emotions helped to strengthen the patient narrative community and expand the social solidarity function of the patient organization,thereby forming mutual emotional support between patients and the patient organization.Therefore,the narrative connections and the advocacy of narrative community among patients are crucial,which not only benefits patients in enhancing their social and psychological support,re-adapting to social life,and increasing holistic healing,but also helps to create a better cancer narrative ecology for the whole society,motivating patient organizations to continuously assist cancer patients in overcoming living dilemmas and improving their quality of life.关键词
病友组织/疾病叙事/叙事共同体/叙事连接/情感支持Key words
patient organization/disease narrative/narrative community/narrative connection/emotional support引用本文复制引用
曾繁萍..疾病叙事中的病友叙事共同体构建与情感支持研究[J].中国医学伦理学,2025,38(6):687-694,8.基金项目
福建省社会科学基金项目"主动健康视域下福建省老年癌症患者养老照护的人类学研究"(FJ2024C159) （FJ2024C159）
福建医科大学启航基金一般项目"主动健康视角下老年癌症幸存者的互助养老研究"(2022QH1013) （2022QH1013）
福建医科大学高层次人才启动项目"癌症防控的社会技术史研究"(YJ230011) （YJ230011）
