中国医学伦理学2025，Vol.38Issue(6)：790-798,9.DOI:10.12026/j.issn.1001-8565.2025.06.16
DMD患者需求及社会工作介入探讨
Exploration into the needs and social work intervention of patients with Duchenne Muscular Dystrophy
孟烨湘 1崔瑜 1王文婧 1燕娟1
作者信息
- 1. 山西医科大学人文社会科学学院,山西 太原 030001
- 折叠
摘要
Abstract
Duchenne Muscular Dystrophy(DMD)is an X-linked recessive inherited myopathy caused by a pathogenic variant of the amyotrophic protein gene.Currently,DMD patients have needs for treatment,education,and social integration at different stages of the disease.Faced with the multiple needs of DMD patients,based on the professional value and ethics of social work,the integrative orientation of social work,and the multiple roles of social workers,social workers can build a comprehensive service system centred on DMD patients and provide multiple services.Specifically,social work intervention paths can enhance the health and well-being of DMD patients and improve their quality of life by providing various services such as in-hospital and out-of-hospital health management,psychological support,resource links,empowerment,construction of social support networks,science popularization,and policy advocacy.关键词
Duchenne型肌营养不良症/患者需求/社会工作/社会工作者/社会服务Key words
Duchenne Muscular Dystrophy/patient need/social work/social worker/social service分类
医药卫生引用本文复制引用
孟烨湘,崔瑜,王文婧,燕娟..DMD患者需求及社会工作介入探讨[J].中国医学伦理学,2025,38(6):790-798,9.
