中国当代儿科杂志2025，Vol.27Issue(7)：815-821,7.DOI:10.7499/j.issn.1008-8830.2410080
新疆地区1型糖尿病儿童青少年生存质量现状调查与影响因素分析
Quality of life and its influencing factors in children and adolescents with type 1 diabetes in Xinjiang
摘要
Abstract
Objective To investigate the current status and influencing factors of quality of life in children and adolescents with type 1 diabetes(T1DM)in Xinjiang.Methods A convenience sampling method was used to select 259 children with T1DM and their primary caregivers who attended three tertiary hospitals in Xinjiang from January 2023 to February 2024.The Pediatric Quality of Life InventoryTM Version 4.0 Generic Core Scales(PedsQLTM4.0)and Pediatric Quality of Life InventoryTM Version 3.2 Diabetes Module(PedsQLTM3.2-DM)were used to assess the quality of life of the children.Information on family demographics,caregiver burden,and caregiving ability was also collected.Multiple linear regression analysis was employed to identify factors associated with the quality of life of the children.Results The scores for PedsQLTM4.0 and PedsQLTM3.2-DM were 77±16 and 71±16,respectively.Both were negatively correlated with caregiver burden(P<0.05)and positively correlated with caregiving ability(P<0.05).Multiple linear regression analysis indicated that caregiver burden,caregiving ability,family income,and parent-child relationship were significantly associated with generic quality of life(P<0.05),whereas caregiver burden,caregiving ability,disease duration,place of residence,and glycated hemoglobin level were significantly associated with diabetes-specific quality of life(P<0.05).Conclusions The overall quality of life of children and adolescents with T1DM in Xinjiang is relatively low.The quality of life is influenced by a combination of factors including family caregiver burden,caregiving ability,family income,parent-child relationship,disease duration,place of residence,and glycated hemoglobin level.Strategies to improve quality of life should consider the combined impact of individual disease characteristics and family factors.关键词
1型糖尿病/生存质量/影响因素/儿童/青少年Key words
Type 1 diabetes/Quality of life/Influencing factor/Child/Adolescent引用本文复制引用
雷瑞玲,穆扎帕尔·麦麦提阿卜杜拉,马燕,黄霞,曹瑞,陈蕴,郭佳..新疆地区1型糖尿病儿童青少年生存质量现状调查与影响因素分析[J].中国当代儿科杂志,2025,27(7):815-821,7.基金项目
新疆维吾尔自治区自然科学基金面上项目(2022D01C439) （2022D01C439）
湖南省三诺糖尿病公益基金会(2022SD06) （2022SD06）
湖南省三诺糖尿病公益基金会(2023SD03) （2023SD03）
新疆医科大学2024年第19期大学生创新创业训练计划项目(X202410760190). （X202410760190）
