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Study on the disease burden and influencing factors of patients with paroxysmal nocturnal hemoglobinuria in China

Shengnan Duan Huaxin Yu Rong Fu Zixuan Lv Pei Wang Hanyu Chang Yaqun Wang Hanxiang Chen Fanyu Dong Zhe Hao Sijia Che Ni Yuan

Pharmacoeconomics and Policy2025，Vol.1Issue(2)：P.100-106,7.

Pharmacoeconomics and Policy2025，Vol.1Issue(2)：P.100-106,7.DOI:10.1016/j.pharp.2025.06.001

Study on the disease burden and influencing factors of patients with paroxysmal nocturnal hemoglobinuria in China

Shengnan Duan ¹Huaxin Yu ²Rong Fu ³Zixuan Lv ⁴Pei Wang ⁵Hanyu Chang ⁶Yaqun Wang ⁷Hanxiang Chen ⁷Fanyu Dong ⁷Zhe Hao ⁸Sijia Che ⁹Ni Yuan¹⁰

作者信息

1. School of Public Administration,Dongbei University of Finance&Economics,Dalian,Liaoning,116025,China School of Public Health,Dalian Medical University,Dalian,Liaoning,116044,China
2. Disease Control and Prevention Center of Jinpu New Area(Health Supervision Institute),Dalian,Liaoning,116600,China
3. Tianjin Medical University General Hospital,Tianjin,300052,China
4. Dong Fureng Institute of Economic and Social Development,Wuhan University,Wuhan,430072,China
5. School of Public Health,Fudan University,Shanghai,200433,China
6. The First Hospital of Lanzhou University,Lanzhou,730000,China
7. School of Public Health,Dalian Medical University,Dalian,Liaoning,116044,China
8. Finance Office,Dalian Medical University,Dalian,Liaoning,116044,China
9. PNH China,Shenzhen,Guangdong,518000,China
10. School of Public Health,Dalian Medical University,Dalian,Liaoning,116044,China Global Health Research Center,Dalian Medical University,Dalian,Liaoning,116044,China
折叠

摘要

关键词

Paroxysmal nocturnal hemoglobinuria/Economic burden/Influencing factors/A cross sectional survey/Patients’perspective

分类

医药卫生

引用本文复制引用

Shengnan Duan,Huaxin Yu,Rong Fu,Zixuan Lv,Pei Wang,Hanyu Chang,Yaqun Wang,Hanxiang Chen,Fanyu Dong,Zhe Hao,Sijia Che,Ni Yuan..Study on the disease burden and influencing factors of patients with paroxysmal nocturnal hemoglobinuria in China[J].Pharmacoeconomics and Policy,2025,1(2):P.100-106,7.

基金项目

supported by A Real World Study on the Situation of Children''s Medical Security in Liaoning Province Based on Interrupted Time Series Analysis,China(Grant No.:LJKMR20221296) （Grant No.:LJKMR20221296）

Dalian Medical University Maternal Diseases on Newborns Interdisciplinary Research Cooperation Project Team Funding,China(Grant No.:JCHZ2023016). （Grant No.:JCHZ2023016）

Pharmacoeconomics and Policy

ISSN：2950-2667

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