中国康复理论与实践2025，Vol.31Issue(8)：965-971,7.DOI:10.3969/j.issn.1006-9771.2025.08.013
脊髓损伤神经源性肠道功能障碍患者主要照顾者全程参与肠道管理需求的质性研究
Needs of full participation in intestinal management for primary caregivers of patients with neurogenic bowel dys-function after spinal cord injury:a qualitative study
任良湘 1梅培培 1毛二莉 1汤一帆 1王雪 1叶义清1
作者信息
- 1. 江苏省人民医院(南京医科大学第一附属医院)老年康复病区,江苏 南京市 210029
- 折叠
摘要
Abstract
Objective To investigate the needs of the main caregivers of patients with spinal cord injury following neurogenic bowel dysfunction to participate in the whole process of intestinal management.
Methods Nine main caregivers of patients with spinal cord injury in Jiangsu Province Hospital from January to Decem-ber,2024 were selected with objective sampling method.They were investigated face-to-face semi-structured in-depth interviews,and the data were analyzed,summarized and extracted by Colaizzi 7-step analysis method.
Results Three themes and eight sub-themes were extracted:the needs of professional knowledge and skills standards in intestinal management(lack of intestinal training knowledge,lack of ability to acquire knowledge and different standards of medical institutions);the needs of physical ability and decision making ability participating in intesti-nal training(lack of participation,single decision-making behavior,excessive dependence on medical personnel);the desire for therapeutic benefits and the needs for building psychological confidence(concerns about the pa-tient's prognosis,overdependence on medication).
Conclusion Clinical medical staff should pay attention to the actual needs and difficulties faced by the main caregivers of patients with neurogenic bowel dysfunction to participate in the entire intestinal management,and construct targeted training programs,strengthen the skills and knowledge training,to enhance their autonomy and responsi-bility,to achieve the rehabilitation goal better.关键词
脊髓损伤/神经源性肠道功能障碍/主要照顾者/全程肠道管理/护理/质性研究Key words
spinal cord injury/neurogenic bowel dysfunction/primary caregiver/whole intestinal management/nurse/qualitative study分类
医药卫生引用本文复制引用
任良湘,梅培培,毛二莉,汤一帆,王雪,叶义清..脊髓损伤神经源性肠道功能障碍患者主要照顾者全程参与肠道管理需求的质性研究[J].中国康复理论与实践,2025,31(8):965-971,7.
