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肝移植患者自我报告结局测量系统核心领域的构建

陈潇 张玉侠 周海英 肖文洁 魏黎 赵懿 刘玉静 裘洁 俞静娴

护理研究2025,Vol.39Issue(19):3228-3233,6.
护理研究2025,Vol.39Issue(19):3228-3233,6.DOI:10.12102/j.issn.1009-6493.2025.19.005

肝移植患者自我报告结局测量系统核心领域的构建

Development of patient-reported outcomes measurement system-liver transplantation core domains

陈潇 1张玉侠 1周海英 1肖文洁 1魏黎 1赵懿 1刘玉静 1裘洁 1俞静娴1

作者信息

  • 1. 复旦大学附属中山医院,上海 200032
  • 折叠

摘要

Abstract

Objective:To understand the postoperative health distress of liver transplant patients,and to establish the core domains of the liver transplantation-specific patient-reported outcome measurement system.Methods:From June 2023 to June 2024,a research group was set up.A first draft of core domains was initially formed through literature analysis,patient interviews,and content analysis of medical records.Through Delphi expert consultation,the suitability of each field was evaluated and revised from the importance of each field and the degree of suitability for patient self-report two aspects,to form patient-reported outcomes measurement system-liver transplantation core domains.Results:A total of 19 experts were consulted.100%of questionnaires were returned in the three rounds of correspondence.The authority coefficients of the experts were 0.91.The Kendall's harmony coefficients in each round were 0.423,0.192,and 0.205 respectively.The coefficients of variation for each evaluation concept were 0.08-0.42,0.13-0.39,and 0.05-0.20.After three rounds of consultation,the core domains of self-reported outcome measurement for liver transplant patients were finally clarified,including physiological health,psychological health,social health and overall health four dimensions,covering 22 measurement concepts.Conclusions:The core domains of self-reported outcome measurement for liver transplant patients established are scientific and reasonable,which could help promote the establishment of a liver transplant specific patient-reported outcome measurement system.

关键词

肝移植/患者自我报告结局/测量系统/核心领域/护理

Key words

liver transplantation/patient-reported outcomes/measurement system/core domains/nursing

引用本文复制引用

陈潇,张玉侠,周海英,肖文洁,魏黎,赵懿,刘玉静,裘洁,俞静娴..肝移植患者自我报告结局测量系统核心领域的构建[J].护理研究,2025,39(19):3228-3233,6.

基金项目

国家自然科学基金资助项目,编号:72204053 ()

护理研究

OA北大核心

1009-6493

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