中国医学伦理学2025，Vol.38Issue(10)：1240-1245,6.DOI:10.12026/j.issn.1001-8565.2025.10.02
肾病患儿家庭在治疗阶段的多重伦理困境及对策探讨
Exploration of multiple ethical dilemmas and countermeasures in families of children with kidney disease in the treatment stage:an analysis from the perspective of structured theory
孙蓉蓉 1石娟娟 1杨文静1
作者信息
- 1. 南京医科大学附属儿童医院肾脏科,江苏 南京 210000
- 折叠
摘要
Abstract
There are numerous ethical dilemmas in families of children with kidney disease during the treatment stage.From the perspective of Giddens'structured theory,this paper analyzed the ethical dilemmas,such as individual and family wealth disparity at the micro-level,doctor-patient information asymmetry and the attribution of medical decision-making rights at the meso-level,as well as unequal medical resources and an incomplete medical security system for children at the macro-level.The ethical dilemmas faced by families of children with kidney disease are the result of the structural constraint effect.The coping strategies they adopt in response to these dilemmas are the basis of structural reproduction and the products of the structural effect.As a group with subjective initiative,they are good at self-reflection.Through repeated cognitive evaluation,they can make a series of effective coping strategies to achieve their own goals,such as relying on family support and linking resources to seek social support,establishing online support groups and building an information sharing platform,assessing children's best-interests judges and safeguarding their reasonable and legitimate rights and interests,planning and allocating high-quality medical resources and promoting the construction of the medical service system,as well as promoting the reform of the basic medical insurance system for children and improve the protection mechanism for major illnesses.关键词
结构化理论/肾病儿童/家庭支持/伦理困境Key words
structured theory/children with kidney disease/family support/ethical dilemma引用本文复制引用
孙蓉蓉,石娟娟,杨文静..肾病患儿家庭在治疗阶段的多重伦理困境及对策探讨[J].中国医学伦理学,2025,38(10):1240-1245,6.
