广西医学2025，Vol.47Issue(10)：1462-1468,7.DOI:10.11675/j.issn.0253-4304.2025.10.12
政策工具与利益相关者视角下我国血友病政策文本分析
Analysis of hemophilia policy texts in China from the perspective of policy tools and stakeholders
摘要
Abstract
Objective To explore the focus and gaps in China's hemophilia-related policies from the perspectives of policy tools and stakeholders,providing references for the formulation and optimization of future hemophilia-related policies in China.Methods Policy documents related to hemophilia issued in China from 2000 to 2023 were reviewed.Based on the policy tool and stakeholder theories,a two-dimensional analytical framework of policy tools(X-dimension)and stakeholders(Y-dimension)was constructed,and content analysis method was applied to analyze the policy texts of hemophilia-related policies in China.Results A total of 24 policy documents were included,primarily focusing on macro-level aspects such as the diagnosis and treatment system,healthcare security,and information infrastructure.In the X-dimension,the proportions of supply-type,environment-type,and demand-type policy tools were 42.7%,34.7%,and 22.7%,respectively.In the Y-dimension,the proportions of policy items involving the government,patients,medical institutions,and companies were 38.7%,32.0%,25.3%,and 4.0%,respectively.Conclusion China's hemophilia policies exhibit an imbalanced distribution across policy tools and stakeholders,with insufficient attention given to demand-type policy tools and corporate stakeholders.It is recommended that relevant policy designs should balance the use of various policy tools,particularly by strengthening the application of demand-type policy tools and focusing on patient demand orientation.Emphasis should be placed on improving treatment outcomes and quality of life for patients.Additionally,greater attention should be paid to corporate stakeholders in hemophilia policies,and active efforts should be made to promote coordination and collaboration among all stakeholders to establish a comprehensive service system supporting hemophilia diagnosis and treatment.关键词
血友病/政策工具/利益相关者/文本分析Key words
Hemophilia/Policy tools/Stakeholders/Text analysis分类
医药卫生引用本文复制引用
蒲宇杰,史明如,陈清,刘苏仪,李炫毅,莫鑫鑫,曾丽蓉,罗红叶..政策工具与利益相关者视角下我国血友病政策文本分析[J].广西医学,2025,47(10):1462-1468,7.基金项目
国家级大学生创新创业训练计划项目(202310598032) （202310598032）
广西医科大学再生医学与医用生物资源开发应用省部共建协同创新中心青年教师科研创新项目(CICRMMBR-TC-2023006) （CICRMMBR-TC-2023006）
