国际口腔医学杂志2026，Vol.53Issue(1)：59-66,8.DOI:10.7518/gjkq.2026103
唇腭裂患儿母亲病耻感现状及影响因素分析
Analysis of the status and influencing factors of stigma among mothers of children with cleft lip and palate
赵芮 1王丹 2吕雅琪 3崔珂 3池婷 2黄汉尧 2李杨 2石冰 2龚彩霞2
作者信息
- 1. 四川大学华西护理学院/四川大学华西口腔医院护理部 成都 610041
- 2. 口腔疾病防治全国重点实验室 国家口腔医学中心 口腔疾病国家临床医学研究中心四川大学华西口腔医院唇腭裂外科 成都 610041
- 3. 四川大学公共管理学院社会学与心理学系 成都 610065
- 折叠
摘要
Abstract
Objective This study aimed to investigate the current status and influencing factors of stigma among mo-thers of children with cleft lip and palate(CLP),providing new perspectives and intervention evidence for psychological support for CLP families.Methods A total of 127 mothers serving as primary caregivers for children with CLP were se-lected as the study subjects.Surveys were conducted using the social impact scale,social support rating scale,psychologi-cal resilience scale,caregiver burden scale,and a self-designed demographic questionnaire.Scores from each scale were statistically analyzed,and correlation analysis was performed.Results The extent of stigma among mothers of children with CLP showed significant relationships with monthly household income and the child's age(<3 years vs.7-12 years;P<0.05).This stigma was significantly associated with social support(P<0.05),but the correlation was not li-near.It was negatively correlated with psychological resi-lience(β=-0.241,P=0.002)and positively correlated with caregi-ver burden(β=0.428,P<0.001).Chain mediating effect analysis revealed that caregiver burden-psychological re-silience-social support partially mediated the stigma ex-perienced by these mothers(P<0.05).Conclusion Stigma is prevalent among mothers of children with CLP.The factors influencing this stigma include the child's age,economic status,psychological resilience,caregiver burden,and social support.Healthcare professionals should implement targeted interventions to reduce maternal stigma and improve the long-term quality of life for these child-centered families.关键词
唇腭裂/唇腭裂家庭/病耻感/链式中介Key words
cleft lip and palate/cleft lip and palate family/stigma/chain mediation分类
医药卫生引用本文复制引用
赵芮,王丹,吕雅琪,崔珂,池婷,黄汉尧,李杨,石冰,龚彩霞..唇腭裂患儿母亲病耻感现状及影响因素分析[J].国际口腔医学杂志,2026,53(1):59-66,8.
