现代医药卫生2026，Vol.42Issue(1)：193-196,4.DOI:10.3969/j.issn.1009-5519.2026.01.036
肝豆状核变性患者自我管理行为评价指标体系构建
Construction of an evaluation index system for self-management behaviors in patients with wilson's disease
摘要
Abstract
Objective To establish an evaluation index system for self-management behaviors of pa-tients with hepatolenticular degeneration,and to provide an evaluation tool for understanding the level of self-management behaviors of patients with hepatolenticular degeneration.Methods The evaluation index of self-management behavior in patients with hepatolenticular degeneration was constructed through literature review and group discussion.The Delphi method was used to conduct two rounds of inquiries with experts.The evalu-ation index system was determined based on the results of expert inquiries and weight analysis.Results The recovery rates of the two rounds of expert inquiry questionnaires were both 100.00%,and the authority coeffi-cients of the expert inquiries were 0.874 and 0.864 respectively.The average importance score of the items in the second round of expert inquiry ranged from 4.1 to 5.0 points,with the full score ratio all>0.381.The o-verall coefficient of variation ranged from 0 to 0.217,and the Kendall's coefficient of coordination was 0.156(P<0.001).The final evaluation index system for self-management behaviors of patients with hepatolenticu-lar degeneration includes 7 first-level indicators and 35 second-level indicators.Conclusion The constructed e-valuation index system for self-management behaviors of patients with hepatolenticular degeneration has good scientificity,pertinence and practicality,and is helpful to improve the self-management level of patients with hepatolenticular degeneration.关键词
肝豆状核变性/自我管理行为/德尔菲法/评价指标体系Key words
Hepatolenticular degeneration/Self-management behavior/Delphi method/Evalua-tion index system分类
医药卫生引用本文复制引用
占晨晨,占婷婷,郝文杰,王媛欣,彭程..肝豆状核变性患者自我管理行为评价指标体系构建[J].现代医药卫生,2026,42(1):193-196,4.基金项目
2024年度安徽省自然科学基金项目(2408085QH283) （2408085QH283）
安徽省高等学校科学研究项目(人文社会科学类)(2024AH052735). （人文社会科学类）
