中国当代儿科杂志2026，Vol.28Issue(5)：586-592,7.DOI:10.7499/j.issn.1008-8830.2508071
青少年重型地中海贫血患者过渡期准备现状及影响因素研究
Status and influencing factors of transition preparation in adolescents with thalassemia major
摘要
Abstract
Objective To describe the current status of transition preparation among adolescents with thalassemia major(TM),identify its influencing factors,and provide a basis for transition-period interventions.Methods A convenience sampling approach was used to recruit 138 adolescent inpatients with TM from two tertiary Grade A hospitals in western Guangxi from April to December 2024.Data were collected using a general information questionnaire,a transition preparation questionnaire,the Pediatric Quality of Life Inventory Generic Core Scales,and the Family Caregiving Measurement Scale.Multivariable regression analysis was conducted to determine factors associated with transition preparation.Results Among the 138 adolescents with TM,the mean total transition preparation score was 59±9,the family caregiving score was 189±23,and the quality of life score was 57±14.Age,disease duration,monthly family income,exposure to transition-related information,caregiver education level,family caregiving level,and quality of life level were significantly associated with transition preparation(P<0.05).Conclusions Transition preparation among adolescents with TM is at a moderate level.Nursing staff should tailor family-focused interventions according to patient age and family caregiving capacity to promote transition preparation and improve quality of life.关键词
重型地中海贫血/过渡期准备/生活质量/家庭照护/青少年Key words
Thalassemia major/Transition preparation/Quality of life/Family care/Adolescent引用本文复制引用
黄秀萍,陈玉科,刘月,王杉,罗艳妮,舒秋芬..青少年重型地中海贫血患者过渡期准备现状及影响因素研究[J].中国当代儿科杂志,2026,28(5):586-592,7.基金项目
广西医疗卫生适宜技术项目(S2025087,S2023114) （S2025087,S2023114）
广西壮族自治区临床重点专科(儿科护理)建设项目 （儿科护理）
右医附院中青年骨干项目(Y20212616). （Y20212616）
