中华临床免疫和变态反应杂志2026，Vol.20Issue(2)：77-82,6.DOI:10.3969/j.issn.1673-8705.2026.02.001
家庭管理资源量表在系统性红斑狼疮患者家庭中的修订与信效度检验
Revision and reliability test of the Family Management Resource Scale in families of pa-tients with systemic lupus erythematosus
摘要
Abstract
Objective To revise the Chinese version of the Family Management Resources Scale based on the characteristics and family backgrounds of patients with systemic lupus erythematosus,and to examine its reliability and validity.Method Based on the Chinese version of the Family Management Resource Scale(FMRS),the FMRS for SLE patients were developed through literature review,group discussion,expert cor-respondence,and pre-experimentation.From October 2023 to September 2024,a convenience sample of 138 families of patients with systemic lupus erythematosus was recruited for a questionnaire to test the reliability and validity of the scale.Results For the revised FMRS of SLE patients,the critical ratios of high and low group-ings of each entry were all statistically significant(P＜0.05),and the correlation coefficients of the entries and the total scores ranged from 0.519 to 0.842.The content validity results showed that the content validity in-dices of the single entries ranged from 0.875 to 1.000,and the content validity index of the whole consistency level was 0.959.Exploratory factor analysis extracted four common factors,accounting for 63.253％of the cu-mulative variance.The validation factor results showed a good model fit.Both the aggregated validity and com-bined reliability met the good standard.The Cronbach's alpha coefficient for the aggregate scale was 0.968.Conclusions The revised FMRS for SLE patients has good reliability and validity,providing a feasible and effective measurement tool for future assessment of the status of family resource management for SLE pa-tients in China.关键词
系统性红斑狼疮/家庭管理资源/信度/效度Key words
systemic lupus erythematosus/family inventory of resources for management/reliability/validity引用本文复制引用
杨玉洁,高玲玲,王坤玲,马平,陈莹莹,李香风..家庭管理资源量表在系统性红斑狼疮患者家庭中的修订与信效度检验[J].中华临床免疫和变态反应杂志,2026,20(2):77-82,6.基金项目
国家自然科学基金(32441090) （32441090）
中央高校基本科研业务费(3332019036) （3332019036）
国家卫生健康委能力建设和继续教育中心慢病管理研究课题(GWJJMB202510010041) National Natural Science Foundation of China(32441090) （GWJJMB202510010041）
Fundamental Research Operat-ing Expenses of the Central Universities and Colleges(3332019036) （3332019036）
Chronic Disease Management Research Pro-ject of National Health Commission Capacity Building and Continuing Education Center(GWJJMB202510010041) （GWJJMB202510010041）
