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中国网络社群视角下神经多样性青年社交特征与心理体验的研究

徐伟腾 黄安琪 芝芝妮 柯晓燕 焦公凯

新医学2026,Vol.57Issue(9):935-948,14.
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新医学2026,Vol.57Issue(9):935-948,14.DOI:10.12464/j.issn.0253-9802.2026-0865

中国网络社群视角下神经多样性青年社交特征与心理体验的研究

Community-based inquiry into social communication patterns and psychological experiences of youth with neurodiversity in Chinese online communities

徐伟腾 1黄安琪 2芝芝妮 3柯晓燕 2焦公凯2

作者信息

  • 1. 南京方舟启智中心,江苏 南京 210000||东北农业大学生命科学学院,黑龙江 哈尔滨 150030
  • 2. 南京医科大学附属脑科医院儿童心理卫生研究中心,江苏 南京 210000
  • 3. 亚岗昆学院健康与社区研究学院,加拿大 安大略 渥太华 K2G 1V8
  • 折叠

摘要

Abstract

Objective To explore the social characteristics,psychological experiences and support needs of young people in Chinese online neurodiversity(ND)communities from an insider community perspective.Methods A community-participatory mixed-methods approach was adopted.Participants were recruited through Chinese online ND communities.A total of 103 valid questionnaires were collected,and semi-structured interviews were conducted with 12 ND youth.In addition,artificial intelligence(AI)-assisted text analysis was used to quantitatively explore publicly available comments from online communities and interview transcripts.Results Most ND youth(86.4%)expressed some desire for social connection but experienced varying degrees of social difficulty.Overall,98.1%of participants reported using strategies to adapt to social interactions,with social camouflaging being a common coping strategy.Only 19.4%considered these efforts to be effective,and such efforts were accompanied by varying degrees of psychological and physical burden.Qualitative interviews showed that the social difficulties experienced by young ND individuals involved differences in cross-neurotype communication,adaptation to social rules,social masking,sensory environments,and social support.AI-assisted text analysis showed that neutral sentiment predominated(61.5%),while frequently occurring words concerned social difficulties,psychological distress,understanding,inclusion,and environmental support.Conclusion The social difficulties experienced by ND youth should not be attributed simply to reduced social motivation,but are associated with differences in cross-neurotype communication,environmental fit,and the burden associated with social camouflaging.Greater emphasis should be placed on reciprocal person-environment adaptation and on developing more inclusive and accessible support systems.

关键词

神经多样性/社交伪装/双重共情问题/社群参与式研究/中国网络青年社群

Key words

Neurodiversity/Social camouflaging/Double empathy problem/Community-based participatory research/Chinese online youth communities

分类

医药卫生

引用本文复制引用

徐伟腾,黄安琪,芝芝妮,柯晓燕,焦公凯..中国网络社群视角下神经多样性青年社交特征与心理体验的研究[J].新医学,2026,57(9):935-948,14.

基金项目

科技部科技创新2030-"脑科学与类脑研究"重大项目(2022ZD0209102) (2022ZD0209102)

江苏省"十四五"省医学学科/重点实验室建设单位(JSDW202219) (JSDW202219)

新医学

0253-9802

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