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人类学视域下糖尿病足患者疾痛叙事及文化意涵OACSTPCD

Illness narratives and cultural implications for diabetic foot patients from the perspective of anthropology

中文摘要英文摘要

糖尿病足是糖尿病患者常见的慢性并发症之一,也是糖尿病患者最常见的住院原因,更是导致糖尿病患者残疾、死亡的主要病因.在疾病发生发展及治疗过程中,患者经历了身体、心理和社会关系的复杂变化,他们对疾病的理解及实践,是一个不断建构和变化的过程,其中蕴含了受病情推进、家庭关系、社会文化和传统以及医患互动等因素影响下的策略性实践.采用调查访谈、参与式观察等田野调查方法,基于医学人类学的研究理念,以糖尿病足患者丰富多变、充满个性的叙事为切入点理解患者独特细致的疾病故事,集中回答糖尿病足患者所经历的疾病观、治疗观、家庭观、社会观、躯体观的变化.意在提供理解这一群体的新视角,并为改善他们的治疗和管理提供有价值的见解,有助于推动糖尿病足患者整体健康和生活质量的提升.

Diabetic foot is one of the common chronic complications,the most common cause of hospitalization,and even the main cause of disability and death among diabetic patients.In the process of disease occurrence,development,and treatment,patients experience complex changes in physical,psychological,and social relationships.Their understanding and practice of the disease is a constant process of construction and change,which contains strategic practices influenced by factors such as disease progression,family relationships,culture and traditions of social,and doctor-patient interactions.Based on the research concepts in the field of medical anthropology,this paper applied field research methods such as survey interviews and participatory observation,and took the rich and varied and personalized narrative of diabetic foot patients as the entry point to understand their unique and detailed disease stories,as well as focused on answering the changes in the views of illness,treatment,family,society,and the body outlook experienced by diabetic foot patients.This paper aimed to provide a new perspective for understanding this group,as well as offer valuable insights for improving their treatment and management,which will help promote the overall health and quality of life with diabetic foot patients.

施晓瑞;张亦农;李蒙;刘佳月

上海大学社会学院,上海 200444西安交通大学第一附属医院内分泌代谢科,陕西 西安 710061

糖尿病足疾痛叙事患病经历生命遭遇医学人类学

diabetic footillness narrativesillness experiencelife encountermedical anthropology

《中国医学伦理学》 2024 (003)

317-323 / 7

10.12026/j.issn.1001-8565.2024.03.11

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